Friday, September 19, 2014
15 weeks post surgery
It’s been 15 weeks since my SLAD/R surgery.
I still have a weird sort a voice, to me it sounds a bit
scratchy or raspy.
I had a recheck appointment with Dr. Damrose at Stanford
University yesterday, he assured me that I am doing great. He said the Reinnervation will not occur
until I am about 9-months post surgery.
When the nerves are cut what you get over the months is much like a
Botox treatment, some people get really breathy, others go through the various
stages of a high and low pitched voice.
Then once the Reinnervation begins to happen things will level out and
the real changes will come about. For me
this will be in March.
I definitely have more volume but not a lot, I still use my
voice amplifier when I teach and it seems that my voice gets tired if I try to
talk loud for very long, with the amplifier I can talk softer and the sound is projected to the entire classroom.
Even with the kind of voice I have, it is still better than
what I experienced long term with Botox.
I have been drinking water at times without a straw, it is rare
that I choke anymore, though I still keep the main cup I drink out of as one
with a built in straw.
I have noticed that if I am tired or if I have a lack of
sleep my voice is weak. In a perfect
world I’d have a great night of sleep every night, but I doubt it will happen
every single day. This is just an
observation.
Monday, August 18, 2014
Time passes quickly!
It’s been 10 weeks since my SLAD/R surgery.
I’m still dealing with this weird puberty type of
voice. It seems that it is high and it
cracks at times. Other times my voice is
just tired and it sounds weak.
I have also found that I’ve had some trouble drinking water,
even though I use a straw it seems that I still choke. I try to keep my chin down slightly and this
helps, I am drinking much less water than I used to just because I worry about
choking when I am at work and in public.
I cannot raise my voice, though I can sing and that feels
good! I use my voice amplifier while I
am at work and will be buying another to use at home this week, as the quality
of the sound is so much better when I talk soft.
My scar is healing up okay, it certainly doesn’t bother me
to see it but I can still see the red line.
Friday, August 8, 2014
The Puberty Stage
It’s been 9 weeks since my SLAD/R surgery.
I’ve been hesitant to record anything or even write about my
progress because I am going through the changing voice stage, a “puberty” type
of change. One hour my voice is high,
the next hour it is deep, then it goes soft, and then it is froggy sounding at some
point.
After having a good voice for so many weeks I’ve noticed
that I have gotten very casual with my voice.
I forget that I do not have the capability at this point to produce much
volume so I try and it just sounds awful (to me). It is not a voice where there are spasms like
I had pre-SLAD/R surgery, it is just a raspy or froggy sounding voice. I haven’t liked this phase! I find it strange how we get used to
something so quickly, like my new voice, or adapting to having SD and dealing
with it, and now I expect my voice to be perfect every single day. It is not perfect.
My best sound is still with my voice amplifier (microphone)
that I use with teaching. By using this
I can talk really quiet and the sound is amplified and my voice is very
smooth. I do not use it at home though
and when I leave campus I leave the amplifier.
When I leave work, I will call out to people in the parking lot
to say good-bye and they cannot hear me, my voice just cannot get any volume
yet.
On a good note, it is really nice to be able to sing in
church. I have only mouthed the words
for years and now I really sing the songs.
I cannot sing any high notes and sound more like an alto, that’s okay
though, it is so nice to sing!!
I often take sips of water without a straw, I am fine doing
this but it is still easy to choke so I use a straw for most of what I
drink.
Tuesday, July 15, 2014
5-1/2 Weeks under my belt!
It’s been 5-1/2 weeks since my SLAD/R surgery. I thought I would address a few issues that
had been discussed in an email from someone considering surgery.
Over a year ago I had neck surgery, a discsectomy/fusion
(ACDF), the incision in my neck was from one ear to the midpoint on my neck in
the front, it took a full year for the incision to fade into the wrinkle of my
neck. In addition, because the neck has
been cut, there was numbness around the incision area. Just when I had the SLAD/R surgery the
numbness was nearly gone, this was a full year later. Lastly, the incision area always felt rather taut
or had a full feeling as it was healing. I
almost felt as though I had a band around my neck or a turtleneck on all the
time.
These same sensations exist with the SLAD/R surgery. It just takes time to heal. Nerves do not heal over night, and if you
have second thoughts about this surgery then it is probably not for you. No matter what, this is major surgery, sure,
you get your voice back, but it involves surgery and recovery that comes with issues and it is just not perfect. The reinnervation, according to Dr. Damrose, takes a full year for the nerve function to work at a potential that is considered optimal.
The numbness, taut feeling on the neck, and pain I may have
are so minor compared to what I gained to have the voice I have now that I would not change a thing and I have no
regrets. I was in this 100% before surgery and am
thrilled with the progress. I am fully
aware that this is the beginning and I will sound better as time goes on.
I had 20+ years of Botox and never had injections that
provided the quality of voice that I have now.
Some of you can get by with Botox and that is certainly an easier way to
go versus surgery.
Teaching has been very easy for me, I still use my voice amplifier
and this works great for the volume in the room. I still sound rather high pitched in the morning, my husband says I sound like a teenager, and my voice seems deeper in the evening. I have no idea why this happens. I want to add as a last note that I've had a few people call on the phone and ask to speak to me, they are quite surprised when they realize it IS me, one person the other night said I sounded like my younger daughter (age 25). It is a good feeling to think the old me is returning!!
Tuesday, July 8, 2014
Teaching is going great!
It’s been 4-1/2 weeks since my SLAD/R surgery. Each day gets better and better. Last Tuesday, I taught two classes
back-to-back and it went great! I used
my trusty voice amplifier and I felt good for both classes.
Last Thursday, I had three classes to teach, the last one
was a night class, so it was a long day and I was worried about my voice going
for that long. YIPPEE, it was
great!! I have to admit though I was
tired when the Thursday night class was over.
My voice was weak on Friday but back to normal on Saturday.
I had some students in my classes who came up to me
afterwards; they were ones I’ve had in classes before. They told me I sounded great and sounded so
different.
My husband and I went to see my Mother-In-Law this weekend,
so I was busy and away from home, my voice was pretty good and it feels good to
be able to communicate again. For years,
I have avoided talking to people because it is so hard to be understood.
My life has changed!
I find myself forgetting that I have a voice though. I still have a bit of hesitation when I talk to people or I grab the phone to answer it.
It has been ages since I’ve been able to sing at church, I
mouth the words but a sound does not come out of my mouth. This past Sunday we sang several patriotic
songs, I decided to try it and sang the first verse of each song. Wow, I could actually sing! I still had a fear that if I sang (or talked)
too much that I would not have much of a voice for the rest of the day. This was not the case with singing this time, I
was not able to get a range of notes, but I am sure I sounded as good as any other
average person there.
I still drink everything with a straw and now keep stainless
steel straws in my purse, it is just better to be prepared, I am afraid to
drink out of a glass and tilt my head back at this point. It is easy to choke/cough if I’m not careful
or I just take a big sip out of the straw.
I took a little "selfie" to try to get a picture of the scar. I don't do anything to hide it and it seems to be fading, but it can still be seen a little bit.Monday, June 30, 2014
3-1/2 Weeks Since Surgery!
It’s been 24-days (3-1/2 weeks) since my surgery. It is hard to believe that this much time has passed by so quickly, and that I feel so good.
Today was my first day back to work, though I only had
office hours today and tomorrow I will teach two back-to-back classes. I am nervous about it.
Healing seems to be going great, the incision area looks
nice and I know it will get better with time.
The quality of my voice has really improved, each day I notice I have no
hesitation to talk but still forget that I actually have a voice.
For the most part the from week 2 through week 3 my voice
was very smooth, just a few days ago I noticed that my voice would get these
random higher pitches now and then. I
think this is most likely part of healing process.
I am able to swallow all pills and drinking water is never
an issue, though I always drink with a straw and carry straws in my purse.
I’m still really excited about my voice and how things are
going! I was lucky to have 3-1/2 weeks
off between quarters at the college, but in reality, it does not take this long
to recover. It just takes time to
recover from any surgery, from being tired and undergoing anesthesia.
Saturday, June 21, 2014
2-Weeks post SLAD/R Surgery
My post-op doctor visit two days ago was great. The Resident Doctor did the initial voice
recording and sprayed that nasty stuff in my nose so she could put a
scope/microphone down to my vocal cords.
She seemed very pleased.
When the doctor came in he was also pleased with my
progress. I mentioned that the right
side of my head, on my skull area, over my ear, is still hurting (though not
much), he said it would get better with time, the pain is a type of “phantom
nerve pain” much like someone who has phantom limb pain would experience. Because of the nerve splicing they had to do
the nerve to my earlobe was permanently cut, I will never have feeling in my
right ear lobe. This is rather strange,
the Resident Doctor said putting earrings on might be tricky. I doubt I’ll be wearing any, Honestly I would
not know if it was on, off, poking me, or if I accidently poked it in a new
hole. No biggie less is better!
It took 3-hours to get to Stanford and about that to get
home, traffic was good and so it was a long day. I did a lot of talking on Thursday and on
Friday I was whispery.
I am doing great with drinking water and actually took a
sippy-type of cup with a straw, on the trip Thursday and I did not choke on it
once. I did have more phlegm than I have
had on Thursday morning, and since I really think there is some connection to
foods I eat, this time I cannot connect the dots. Maybe it was just a case of the nerves with
going to this doctor appointment, so I was glad I brought a box of tissue with
me in the car.
The doctor said that there are no restrictions on what I can
eat, drink, or talking at this point. He
said to use my own judgment on what works for me.
Thursday when I stopped at the store on the way home, a very
young girl checking me out asked if I had been cut on my neck, she said it
looked like I got slashed. I told her I
had surgery, she then said that it looked awful and she was watching me and
worried that someone cut my neck. You
can imagine that I flipped the visor down to get to the mirror and looked at my
neck when I got in the car. Ha, I
thought the scar was looking pretty good at this point!
Wednesday, June 18, 2014
Drinking Water!
Water, water, water~
Yum, I am able to drink several of these containers a day now. What a difference it makes to drink
water. My head has to stay totally
level, then I use this sippy type of reusable cup, it is perfect! I tend to choke when I a regular glass and a straw with
water. I think with the addition of drinking so much more water that my overall health and healing will definitely improve.
I am finished with my antibiotics, though I am taking a few vitamins/supplements and some thyroid medication, so I still use the applesauce, a new unsweetened one now. I do not need to cut any pills.
It seems that these changes came about overnight! Talking is so easy now, when I answer the
phone I am usually shocked at my own voice.
My husband understands me and usually tells me several times a day that he
is so surprised I sound so good.
The phlegm/mucus issue is so much better. Today I have only coughed up this stuff once
using one tissue. Quite a change from a
week ago when I was going through more than a box of tissue a day, the thing
is, all of these things get better with time.
I have noticed that anything with dairy causes the phlegm, so I have avoided all of it, even Greek yogurt caused extra phlegm. While I love carrot juice, for some reason, I cough mucus after drinking it. I mean carrots, who would think?
Monday, June 16, 2014
10-Days under my belt!
10-days post surgery.
Goodbye forever to Thick It! My
advice to anyone thinking about surgery, buy the smaller size. I got to the point where looking at the
container made me gag.
I still cut up pills in half or quarter them. I am on my last day of a 10-day round of two
different antibiotics. The bad part is
the “nasty” Thick It was horrible and I could not drink plain water, so I use
applesauce to get the pills down.
I am not an applesauce connoisseur, but I can tell you that
after I used up the Seneca 100% Natural one, my sweet husband bought some Mott’s. After using it to take my pills I thought it
was disgustingly sweet, so after reading the label I discovered that it
contained high fructose corn syrup, which was listed second after apples. I don’t understand, does applesauce really
need this extra sugar? Well, jar will be visiting the garbage soon.
My voice is so much better.
Yesterday I went to church and several people commented that I sounded
good, though I was soft. It is easy to
get worn out at this point, it feels so good to talk, and so I do. It doesn’t take much to realize that my voice
is wiped out and I am exhausted.
I am able to eat just about everything now, though I long to
have big gulps of water! What can I
say? I’m a water drinker. I can now drink little sips through a straw
but not enough to quench my thirst or just feel like I am getting enough
fluids.
I am still very excited about my progress and having had
this surgery. I see Dr. Damrose for my
post op appointment on Thursday.
Friday, June 13, 2014
1-Week Post SLAD/R Surgery - Bruised
Today it has been a week since surgery. Wow, I honestly did not think this day would
ever get here! It just seems that for so
long it was weeks away.
This past week has been both exciting and challenging. I have a voice, yes I do!! Now that is exciting!
My neck is still swollen and bruised. Okay, I bruise easily anyway, if you are
going to have this surgery maybe you won’t bruise as I do. A year ago, I had ACDF (Discectomy/Fusion)
in my neck and I was also a bruised mess, probably due to my pale skin.
Day before yesterday, a Costco chicken tamale was screaming
from my refrigerator, “eat me, eat me” and so I did, transitioning to my first
solid food. Um, this was not a good
choice. It was just too spicy and the
taste just stayed with me way too long, though I did not choke while eating it.
I have been drinking Naked Green Machine Juice and eating
applesauce, it was yummy but the juice never did quench my thirst. Yesterday I tried carrot juice and
immediately choked, though I tried it later and in tiny sips with a straw I was
okay, it is much better for quenching the thirst, I also had it this morning
and it was really yummy!
The strange thing is- in the hospital, I thought the Thick
It was A-OK, it has a “cereal-like” taste, in a weird way, maybe it smells like
cereal instead of tastes like it. When I
got home and drank the stuff, it almost makes me gag, it reminds me of the hospital
and having to take pills, so buy the small container if you are planning on having
this surgery.
I am taking two different antibiotics and I still have to
cut these up to swallow them. Right
after surgery I had to have them cut into 8 small pieces, I am now to the point
where I can cut them in half and take them.
Applesauce works the best to take pills, I know this is strange and I
never would have done this, but a spoonful of applesauce will help a pill go
down!
The phlegm or mucus is just a crazy thing, ugh. I go through 1-1/2 boxes of tissue a day,
just spitting into a tissue every few minutes, it makes me wonder where the
mucus comes from and where it has been all these days, months... Living in the hub of the allergy area of
Central California, 2-days ago I thought that maybe the mucus was really due to
allergies and so I decided to take a Claritin-D. This is something I won’t do again. I did have about four hours where I was free
of this annoying phlegm, though the Claritin-D kept me awake all day and
through the night. I slept 5-minutes
here and there throughout the night and woke up feeling awful.
A long nap, and a great
dream, helped me to feel much better. My
dream was one where I was talking, I mean talking normal, with a voice! I even yelled out to my dogs in my dream, in
a normal voice and they came running.
When I woke up, I was shaking my head up and down and smiling that it
was great to have a voice.
Tuesday, June 10, 2014
Hospital Stay
When I got home, after 3 days of not being able to shower,
it felt good to un-wrap the bandage on my neck and wash my hair. Though the compression bandages are supposed
to stay on through the weekend, I have to say they are rather itchy.
Food is boring now!
The apple juice the hospital dining room sent was pre-thickened and I
had a choice of creamed carrot, creamed chicken and creamed tomato soup. At home I had “Naked Green Machine Smoothie”
which was just the right consistency. I
tried some canned chicken noodle soup but I could not swallow the noodles, even
though I dumped out all the broth because I did not want to use the Thick-It
stuff.
Certainly not a favorite picture (below) but this is just out of
surgery, in recovery. I have no idea why
I am smiling- could be the drugs.
Monday, June 9, 2014
Day-3 Post Surgery
Hurray – surgery is complete, now I am waiting to be
discharged from the hospital. Originally,
surgery was scheduled for 4-5 hours with a one-night stay in the hospital.
I got to the hospital Friday morning with one of the worst
migraines I’ve ever had! The
anesthesiologist gave me a shot of Zofran and also put an anti-nausea patch
behind my ear. I was happy when they
finally took me to the OR and I knew I would be put out of my misery
(headache).
Surgery took about 7.5 hours because of some challenges and
complications. A year ago, I had a
discectomy and fusion, the incision was made on the front right side of my
neck. Dr. Damrose went in partially
through this old incision and extended it more to the front. Finding the nerve on the left side was
perfect and like a textbook case (so he said). On the
right side there was so much scar tissue that after cutting it out they
realized the scar tissue had grown around the donor nerve they wanted to use,
this nerve was too short so they went deeper into my neck, and found another nerve
and were able to splice two nerves together to make a longer one.
The first day post-surgery was hard to swallow, it felt
as though it was the worst sore throat I’d ever had in my life. Thank goodness, for the vacuum aspiration
tube I have had here by my bed to vacuum and spit out the phlegm/mucus. I have been on a “nectar thick full liquid”
type of diet. It is very boring and
consists of cream of rice, creamy soups and pre-thickened apple juice.
This is the third day in the hospital and I am so glad I get
to go home!
Oh I might add that even though I have a soft whispery voice, it sounds much better than it did on Friday!
Thursday, June 5, 2014
SLAD/R Surgery 1-day away!
With my SLAD/R surgery just a day away, it seems that I have
a lot to do to get ready. I bought a
container of “Thick It” a few days ago, the choice was a very small container
for $9 and the large container for $23, I opted for the large. I hope that I won’t need this stuff too long,
it does not sound appealing!
Today I have presentations in my last class, so I brought
home my voice amplifier last night because I will not be lecturing today. I am thinking about buying a new system,
though this has worked great for several months, but it just does not carry sound in a large room
very well and I'd like to try another.
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